The Child of Courage Award is awarded to exceptional, inspirational children who manage to achieve, often against diversity. Given for courage, determination and a positive disposition to serving, Essex-based children under 16 years old.
The 2025 Child of Courage Award is sponsored by the founder of the Pride of Essex Awards, Susie Cornell MBE., DL. Susie is an award-winning natural health practitioner with an MBE and is also Deputy Lieutenant of Essex (DL). From her clinic she gives nutritional and physical help to people with difficult-to-treat health conditions, including ME, multiple sclerosis, candida, anxiety and other stress related conditions. Please click here to visit her website, and click here to listen to her 'Soundtrack of My Life' interview on BBC Radio.
The Pride of Essex Child of Courage Award 2023 was sponsored by Susie Cornell.
Jacob, was once described as a miracle baby. He was stillborn, with asphyxia, a severe brain injury, but survived. It took doctors 22 minutes of resuscitation to get Jacob breathing. He defied all the odds, being able to walk after his parents were told he may never be able to walk or talk. Jacob has raised thousands of pounds for a charity close to him, called ‘The Dream Factory’.
When Jacob was five, he ran a mile a day, for 50 days. This year, at just seven years old, he climbed to the summit of Mount Snowdon. Jacob always wants to help others, and always put others first.
Poppy, has a type of dwarfism called Achondro-plasia. Poppy is 8 now, but she is the same size as a 5-year-old. She has to constantly exceed herself, to keep up with her peers. Whilst she has adaptations at school and home, she always wants to try and do things, the same way as her friends, which can be really frustrating for her.
One example of Poppy's courage and perseverance, is her annual school Sports Day. Poppy isn't as fast, or as strong, or as agile as her peers, and she hates people watching her come last every time, but she always gives 100%, and always does it with a smile on her face. That sums up Poppy completely - someone who faces adversity every single day, but someone who comes out fighting.
Kady has had a lot to put up with since suffering terrible treatment as a small baby. She is registered as disabled, has VP shunt fitted, and has partial sight impairment condition. She now lives with her loving Grandmother who nominated her for an award. Each day she faces immense struggles but strives to be same as her peers. She attends Grovewood primary school who are fantastic and supportive. Kady has a real determination within her to try to do anything but knows her limits. She has undergone many MRI scans, CT scans, blood tests, eye tests, physio courses, counselling, operations, so much treatment over the years more than any child should have to. She is only the size of a 4-year-old yet despite her 8-year-old friends towering over her she will still muck in and try her best to join in all activities. She has such a positive attitude in life and has a gentle nature. Kady cannot walk far distances, has mobility issues which again limits her, but she will always smile and get on with things. Her Grandmother says, “Kady is a true example of courage in her everyday life. At school Kady has been nominated by class friends to be part of Kindness Crew, she is very proud, and so are we! She deserves the world!”
Sadie, has Cerebral Palsy, having been born prematurely at 27 weeks. From the day she was born, she was a brave and determined little girl. She has endured, numerous physiotherapies, from a year old, and had life-changing surgery at the age of 4, to enable her to walk, with the aid of a walking frame. She has attended mainstream school, and thrives, due to her love of learning. She is a huge advocate, and inspiration, to young children with disabilities, and never lets her disability get in the way, of her enjoying life and achieving, all the things she wants to. Cerebral Palsy is just a small part of Sadie, but it also pushes her, to show the world that anything is possible. She is a ‘Diversity model’ for Zebedee Talent, and has worked with brands such as: Lego, Morrisons, River Island, and recently, featured in a BBC drama, called ‘Best Interests’. Sadie loves that she can represent other children with disabilities, and that they can be seen and included on TV, like anyone else, and aspire to do the same. Sadie loves to take part in charity events, and raise money for worthy causes.
Her Mum, Kelly, says, “Sadie is mature for her years and is loved by her peers, and adults alike. It hasn't been easy for her over the years having a physical disability, but she continues to push herself, while all the time having a huge smile on her face.”
Tamara faces many challenges in her everyday life but always has a smile on her face! Tamara has Di George syndrome which means she has palate, heart, gastro and endocrine complications whilst she is also deaf requiring hearing aids. She also is fed via a feeding tube due to multiple food intolerances.
Her nominator Anita Newstead said, “I nominated Tamara for this award because she has endured so many challenges in her short life and spends so much time in and out of hospital, yet she smiles her way through and copes with everything that life throws at her. She is very kind and thinks of others and is known for her kindness to other children. We were told that she is much loved by all who meet her and is a little ray of sunshine... but still keeps her mum and dad on their toes!”
The Pride of Essex Child of Courage Award 2022 was sponsored by Susie Cornell.
6-year-old Olive had a stroke in February 2021, and an amazing team at GOSH gave her a life saving brain operation to protect the brain function.
The doctors said not to expect her to be able to walk, talk, sit up ever again. Her recovery has defied all odds, she is now in full time school, she has a lovely group of friends, she has danced a solo in a dance show, has swam in the sea and climbed a tree.
Her Mum Gemma says “So many people call her a miracle. But I see how courageously she works, it’s her strength and determination, she has learnt all that from Ability Therapies. She is our miracle and Ability Therapies are our heroes”.
El is 10 years old and has Escobar Syndrome, a rare genetic disorder featuring joint contractures and respiratory distress. He has regular infections, multiple surgeries, is in daily pain and had to shield during lockdown. Shielding prevented him from attending school despite having previously enjoyed it. Despite these challenges, El is extremely thoughtful, fiercely loyal to friends and family, empathetic and brave, being willing to engage with ‘Kids Inspire’ to secure the support he needs at this time of his life.
Maria is 13 years old. Eight years ago, aged 5, she was involved in an accident. Crossing a road with her father, she stepped out from a traffic island, catching her trousers under the wheels of a passing lorry, which span her round and round.
She has had over 50 operations since, missed primary school completely and spent much of her childhood in frames and casts. She briefly attended secondary school part-time, but experienced difficulties and now stays at home. In 2021, she was diagnosed with complex PTSD by ‘Kids Inspire’, where she receives therapeutic support. Maria’s parents describe her as 'very brave' and caring. She recently offered to donate her long hair to a children’s cancer charity who make wigs.
Sidney was born with cerebral palsy and visual processing disorder. He was later diagnosed with Autism and ADHD. According to forecasts Sidney should never have walked or talked and would have to continue his life with severe difficulties of sight.
He has struggled with physio, speech and language therapies, and ever more therapies for his eyes. He still must wear painful splints and uses a wheelchair at times. He has no 3D vision or facial recognition; crowds are considerably difficult for him as he struggles processing motion. Noise and other sensory stimuli can overload his senses quickly. Despite all this he manages to attend a mainstream school, participates in all activities, goes to scout groups, swims and plays football. He will try anything and encourages everyone to do the same. He has tried abseiling and paddle boarding with his friends at Beavers. He has even tried tree surfing!
His Mum Monica said, “He’s our hero for always thinking about others despite everything he’s been through. He is undergoing Botox to relax his legs, followed by very painful casting, whilst in the cast he cannot walk let alone play, yet he has managed to be recommended for the FA pathway for the para-Olympic football team. We just couldn’t be prouder of what our little hero has achieved.”
Havens Hospices nominated Matilda, from Chelmsford for her fundraising efforts in memory of her sister Bella. Little Havens supported the family with regular respite, support and symptom management stays for 15 years and end of life care in August 2021. With help from her mum Christine and dad Tony, Matilda wanted to celebrate Bella’s 16th birthday on 20th February (the first since she died) by collecting more than 400 toys for the hospice.
In addition to the toy drive, Matilda continues to fundraise in memory of her sister. She recently took part in a Nuclear Rush obstacle course with friends and family of Bella’s, the first of many challenges to raise money for the hospice. This August, she set a challenge to complete 60,000 star jumps because the family thinks all the hospice staff are stars. Matilda hopes to raise £6000 through her efforts and those of her friends and family.
In Matilda’s words, “My family and I would love to raise as much money as possible to help Little Havens continue to provide care to other children and families and to make sure they know just how special they all are.”
The Pride of Essex Child of Courage Award 2021 was sponsored by Susie Cornell.
Austin is an identical twin to Freddie born 15 weeks premature, both had only a 1% chance of survival. At just 5 weeks old weighing 2lb, Austin had his first brain surgery at Great Ormond Street Hospital. Now 7 years of age, Austin has had six emergency, life threatening brain surgeries and an emergency hernia operation. Austin lives with a VP shunt in situ due to hydrocephalus and has had life-changing surgery known as SDR. As Austin has Cerebral Palsy, he underwent the pioneering SDR procedure, where the nerves in the back are ‘re-wired’, to help remove the spasticity in his muscles, giving him the biggest chance of independent walking, as possible.
In Austin’s early years, his parents were told to expect that he would not walk, talk or have any chance of independent living. Fast forward to today after years of intensive physiotherapy, coupled with Austin’s sheer determination and continuous smile, he attends mainstream school with Freddie and although he is not fully walking independently, he no longer uses his wheelchair. Each day he achieves more and more independence. Against all the odds he is now reading and writing. We are proud to say Austin and Freddie have represented Great Ormond Street and Marks and Spencer’s in both inclusion campaigns and advertisements. Austin and Freddie are hard in training for the Marvel Superhero Series, the UK’s only disability sports series for the everyday superhero, in which Austin and Freddie will together complete a 2.5k walk, followed by a 2.5k trike ride around Dorney Lake.
Isabelle and Emily were Highly Commended last year with their father Lee for fundraising. Well it’s gratifying to see that they are keeping the good work up! This year their dad nominated them... here’s what he said, "The girls on a very cold December night spent 27 hours sleeping rough to raise money for 4 charities. They also completed 120 miles cycle ride to raise more money, they baked cakes to put some smiles on the faces of our neighbours. Last Saturday they completed a sponsored silence for the whole day and during lockdown they just kept thinking of ideas to fund raise, as they wanted to help so many more people. Every day the girls amaze me, and inspire me to do more as a fundraiser. They have raised over £30,000 for many different charities, and in the past 2 months they have raised around £4,000. What amazes me is they take it all in their stride."
Luca’s older brother was tragically killed at school by a falling locker in 2019. In the two years since, Luca has been the rock that holds the family together. He attends the same school as his older brother did, which must be hard in itself. He's so well behaved, he may have struggled at school because of time off, but he's working very hard at his home schooling to catch up. He was sadly at his swimming lesson when this awful accident happened. He amazes everyone how he has managed to survive with such a shocking tragedy in his life. He's a cheeky little boy, full off love, and he will never know how much he's held the community together... he keeps his brother's legacy alive.
Oscar was born with challenging health situations including Cerebral Palsy. Sadly over the last year his health has deteriorated which has led to many planned and unplanned hospital admissions. He has had many medical procedures, surgeries, medications and finding a balance of pain relief to keep him comfortable, as he is moved to the palliative care team. Oscar attends South View School in Witham for a few hours each week and the Braintree ‘Parc special play centre’.
He absolutely adores younger brother Jack, loves his days out to the farm, his music and Harry Potter! His Nominator Charlotte Potter wrote, “If I could give Oscar and his family anything it would be time... time for them to celebrate their son being an absolute credit to them, inspiring so many others in the world for being bold, brave and most of all being himself because that's what life is all about. Oscar truly deserves an award."
Sonny was born with 5 different congenital heart diseases. He lives with only half a functioning heart. His family were told that he could never live a normal life. He has endured 9 surgeries, 2 cardiac arrests, and a cardiac tamponade. His family says that even though his life revolves around hospitals and surgeries, he never stops smiling, he is the heart of the town, and shows the world how to love life. He walks, talks and even attends a main stream school. Unfortunately he has had to be shielded from the real world since the pandemic began in 2019. In 2021 he had two more surgeries and is now going in for his biggest yet. The recovery time is unknown. His mother Danell Dreelan said, "He is the inspiration to get up every morning, and has taught me what selfless really means."
The Pride of Essex Child of Courage Award 2022 was sponsored by Susie Cornell.
Joshua was born prematurely at 28 weeks with a congenital heart condition. He spent 6 months in hospital and had 3 heart surgeries and bowel surgery for a life threatening condition. He had several cardiac arrests and numerous complications. Doctors didn't expect him to survive and if he did they expected him to be oxygen dependent, tube fed and have neurological damage.
Now the Doctors call him their walking miracle! He still suffers with chronic lung disease and has an ongoing heart condition, which limits what he can do, but Joshua possess a steely determination to be the same as his peers and tries to live his life to the full. He decided he'd like to learn Karate like some of his friends and has developed into a regular young Karate student in Chelmsford. Over the years he has helped to raise thousands of pounds for the Royal Brompton hospital by telling his story and has been the poster boy for a number of their fundraising campaigns. As part of their 70th anniversary celebrations he won a competition to say thank you to the NHS for saving his life. He gave a speech at Chelmsford cathedral thanking all those who save lives every day. NHS Health Watch saw this and reunited Joshua with hero... his life saving doctor Dr. Babu. As a result a short film of Joshua’s experience was made this year and has gone on to be the peoples choice in the National children’s film award. Inspiration indeed!
Myah had worked hard to learn her lines and songs for the lead part in the musical ANNIE to perform at her school Woodham Ley Primary. Before the curtain went up the show became a victim of the Lockdown. Myah was very disappointed, but realised that there were people much worse off, vulnerable and struggling to get shopping. She found this incredibly sad so she decided that although she couldn’t sing on stage she could sing to make a difference and help. That is how ‘Singing for Tins’ came about. Myah rewrote the lyrics to the song ‘Tomorrow’, she made a video of her revised version with pandemic hope lyrics which she shared on a Crowd Funding page. Very soon she met her first target and started buying food. The tins would be distributed by the Rayleigh Evangelical Church Food bank. On many occasions Myah delivered the tins to the food bank herself. Her Grandmother said, “We are very proud of Myah for turning a negative into a positive, and for thinking of others at a time when she herself was devastated. She was able to put her own feelings aside and help those in most need.”
Shai was born with some severe disadvantages Laryengeal Cleft, Esophageal Dysmotility, Gastroparesis, Ligament Laxity, Low Muscle Tone and Hypermobility. From 18 months old she has had to be tube fed. She has never been able to taste things we take for granted like a glass of juice, a bar of chocolate, or a pizza. She has to be hooked up to her machine for 15 hours a day. Even so Shai stays incredibly positive and has a wonderful outlook on life. Two years ago Mum Lindsey set up the charity Shais Smile, the aim is to help and support other children and families who are going through similar things. Shai has done a great deal for the charity including fundraising events and sponsorship. She will often visit other poorly children in hospital giving them one of the Shais Smile charity bears. Shai likes to see them smile and cuddle their bears. Last year Shai helped to write the charity's first children's book called "Stars Can't Shine Without Darkness", which aims to raise awareness of tube feeding. Shai has so many ideas for the charity and is passionate about raising awareness. Mum Lyndsey says, “Shai is an inspiration to so many people and deserves to be recognised for the outstanding work she does and the people she helps.”
Alexia has had to fight for her life from day one. Arriving at 28 weeks, unable to breath by herself and weighing just 2lb 15oz, She was born with quadripledgic cerebral palsy and epilepsy. Her mother was told Alexia would never, walk, talk or be able to feed herself. In 2016 she underwent a 10 hour surgery to reconstruct her hips. By 2018 the family had managed to fundraise nearly £80000 to take her for life changing surgery in the USA. She now attends a local school, talks and is able to feed herself. She has had many operations to ease her cerebral palsy and has physio most days. She goes riding and swimming to strengthen her muscles. She has the most beautiful smile and the children in her school all love her. She can now use a walker and can ride an adapted bike. She has more operations planned in the future but she takes them in her stride. She is such a happy child despite it all she has become a major inspiration to many.
Millie has multiple health conditions, heart, hearing, eyesight, arthritis, so far she has needed 5 surgeries and will need more. She is very behind at school but despite it all she just gets up and gets on with it. Great Aunty Claire says, “Everyday our Millie suffers pain, but our beautiful girl continues to make us smile and enjoys her life. She is amazing, nothing fazes her, she gets up goes to school, has to wear braces on her legs, she struggles with her walking but she always tries so hard. Millie really does put us adults to shame. With all the problems that are thrown at her Millie has every reason to quit but she doesn’t, she deserves so much to be nominated as a child of courage."
The Pride of Essex Child of Courage Award 2019 was sponsored by the Cornell Centre.
Callum was born at 33 weeks with Congenital Diaphragmatic Hernia, Cerebral Palsy, Chronic Lung Disease and Neurofibromatosis Type 1 including optic tumours. He had his first operation at 3 days old, and spent 8 months in Kings College NICU. Many times his family was told he wouldn't survive. When he came home no one knew if he would ever be able to walk or talk. Callum started walking when he was 4. Through determination and fight Callum has made magnificent progress and attends mainstream School, Thundersley Primary. Callum lights up the room, and makes everyone smile. He is a massive football fan, if you Google him you will see he is a friend of the stars having met footballer Mesut Ozil from Arsenal a few times, and sung with Alfie Boe at the Royal Albert Hall. Callum has even joined Westcliff Soccability and Horse Riding at Barleylands RDA. He is believed to be the only child with all these conditions, he is rare and unique, and an inspiration to everyone he meets. He has a fantastic younger Sister Sophie who is 5 and who helps him lots, to go up and down steps, and with his food, which has to be mashed. Callum is a Rays of Sunshine wish child, and has now become an ambassador for the charity, helping to raise awareness and funds. Recently Callum and Sophie pitched for Rays of Sunshine to be their Schools Charity for the day, and they won out of many charities! They raised the amazing amount of £2,185.
In 2015 Emma and her father James were jointly highly commended for their fundraising. On her own Emma has, since the age of 5 or 6, raised money for her chosen charity, Bloodwise. Emma’s ambition was to follow in her father’s footsteps by cycling London to Paris. She badgered her Dad until he agreed he would grant permission providing she proved she was capable by completing a 100-mile ride first! Which of course she did with ease! She completed the three-day Paris trip, covering around 180 miles, and in so doing raised over £1,500 for the charity.
Proud Dad said, "Emma is the epitome of showing what children can do if they put their mind to something."
Billy was born with numerous issues including ADHD, OCD and Kidney problems. He was subject to serious bullying and taunting in school and was losing faith in his one love, football. Fortunately he stayed strong, slowly getting his love of the game back. He joined an Essex team, and his passion returned. In July of this year Billy was awarded with ‘The Player's Player of the Year’ and was one of the team's top scorers. In December 2018, Billy created a Children’s Grotto in his Nan’s shed, for children who couldn't afford to see Santa. He had reason to be proud of himself, as he raised £500 for the Hospital that had cared for his baby brother. Billy has overcome the bullies, and learned that he is loved regardless of his illnesses. He always has a smile, and forever is an inspiration. He acts as a mentor for other sick children, he says to them, "Look at me, I’m ill, and if I can do it so can you.” He is now a gold medallist athlete for his school and, despite all he has been through, his school attendance is perfect, academically he is thriving in mathematics. When he grows up Billy would love to fulfil his dream and play for Tottenham Hotspur. If not, he hopes to teach sports to children just like himself.
Bella-Mai was born premature at 30 weeks in very poor condition, she wasn’t expected to survive more than a couple of hours. After 11 months, in 3 specialist hospitals and numerous operations Bella-Mai was allowed home with stacks of medical equipment to keep her alive, oxygen, CPAP, suction machine and feed pump. Bella-Mai has finally been diagnosed with a life-limiting syndrome called Coffin-Siris. There are only 200 known cases worldwide. Bella is in and out of hospital fighting infections, yet this little girl is always full of smiles. She had heart surgery and came out smiling; her strength really is an inspiration.
Bella-Mai’s Mother Jane says, "As a family we have to enjoy each day as if it could be her last. Bella-Mai spreads love and happiness, more than you could imagine and continues to defy everything that the medical professionals have said about her. It would be wonderful for as many people as possible to know of the strength and courage my little girl has. She has become an inspiration for other young disabled children and their parents, to keep going and realise that life can still be good."
William has been poorly since birth. He has a rare genetic condition called Angelman Syndrome; William faces a life of therapy and one to one care, twenty-four hours a day. He is under Hospices in Ipswich and attends other various therapies weekly to improve his quality of life. He attends Waterbabies swimming where his achievements are outstanding. He may not be able to walk but he can now balance on a woggle and swim with support. His underwater photo is so popular the hospice is even using it on the front page of their brochure around Essex, Suffolk Norfolk and Cambridge.
William’s auntie Sarah says, "You cannot fail to be impressed when watching videos of him swimming, using his walking aids & learning to communicate via a tablet."
The last word should come from William's Mum Emma, who says, "I have yet to meet anyone who hasn’t fallen in love with his cheeky disposition, his cuddles and love. For him to be like this despite all he goes through absolutely astounds us. I have a new hash tag, just for him, on my angelmum Facebook page #BeMoreWilliam because of his incredible courage and tenacity. He inspires so many."
The Pride of Essex Child of Courage Award 2018 was sponsored by the Cornell Centre.
Finley Ranson, an 8-year-old from Battlesbridge, is a remarkable young boy who faces serious health challenges with incredible resilience and compassion. Finley is tube-fed and undergoes 8-hour infusions at Broomfield Hospital one to two times a week due to his medical condition, which keeps him from doing many activities other children his age can enjoy. Despite his own struggles, Finley consistently thinks of ways to help others, especially those facing similar challenges in the hospital.
Finley saved his pocket money to buy Easter eggs for the children on the ward, even though he cannot eat them himself, and he also created and sold bracelets with his sister to raise money for good causes. His inspiring spirit led to a successful fundraising campaign, raising £10,000 for Great Ormond Street Hospital, and he even organised a toy donation to Broomfield Hospital's Phoenix Ward. Despite his own difficult days, Finley's kindness and selflessness in helping others is truly inspiring, and his actions reflect an exceptional level of maturity and generosity.
Cillian Whyte, a 7-year-old from Chelmsford, is an extraordinary young boy who has overcome significant health challenges with remarkable strength and determination. Born with only two chambers in his heart instead of the usual four, Cillian underwent two open-heart surgeries at the Royal Brompton Hospital, yet his resilience has never wavered. Despite doctors advising his mother to terminate the pregnancy, Cillian’s family persevered, and his journey has been nothing short of inspiring. Even as a young child, Cillian has defied all expectations, participating in physical activities like karate and football, despite his doctors’ concerns about his stamina and exercise tolerance.
As a karate student, Cillian has excelled beyond all limitations, achieving a brown belt and competing in tournaments where he has won medals. His dedication to training is unwavering, and the scar down his chest is a testament to the strength he has shown throughout his life. Cillian's progress is a source of inspiration to everyone around him, especially in his karate club, where he is seen as a regular, energetic child with no signs of the congenital heart condition he faces. His positive attitude and determination to live life to the fullest make him a truly remarkable and inspiring young person.
Evelyn Ewles, a 10-year-old from Chelmsford, is an exceptional young person who has shown remarkable strength, compassion, and resilience in the face of difficult circumstances. Despite her own personal challenges, including the ongoing care of her twin brother, Ryan, who requires multiple surgeries and treatments, and the loss of her younger brother Isaac, Evelyn has consistently gone above and beyond to support her family. As a young carer, Evelyn has shown a level of patience and understanding beyond her years, taking on responsibilities that many adults would find overwhelming. She also continues to excel at school.
In addition to her role at home, Evelyn has become a passionate advocate for her brother’s needs, learning sign language to communicate better with him, and even performing in a signing choir at prestigious venues like the O2. Evelyn’s dream is to become a cardiac surgeon to help children like her brother, Ryan, and to later work in a special needs school. Her deep empathy, maturity, and unwavering dedication to her family make her an inspirational figure, and she is deserving of recognition for her extraordinary efforts, not only at home but also in her school and community.
Connor McCarthy, a 13-year-old from South Ockendon, has shown remarkable determination and selflessness in raising awareness and funds for Scoliosis UK, a charity close to his heart due to his mother’s battle with scoliosis. Connor undertook the challenging feat of swimming the equivalent of the English Channel (21 miles, or 1,332 lengths of a 25-meter pool) in just seven days, swimming 3-4 miles every morning before school. His dedication to this challenge, which he completed before starting his school day, highlights his incredible work ethic and commitment to helping others.
Despite the demands of this tough challenge, Connor continued to excel in his swimming competitions, winning consistently while remaining humble and supportive of his teammates. His efforts not only raised thousands of pounds for the charity, but also helped raise awareness about scoliosis in his community. Connor is a truly inspiring young person whose hard work, caring nature, and determination make him an exceptional role model for others.
Bobbie-Jean Cook, a 10-year-old from Colchester, has shown extraordinary courage and dedication in raising awareness and funds for congenital heart diseases, after learning that her brother was born with five congenital heart conditions. Despite her young age, she has given up her childhood to help care for him and has raised thousands of pounds for the Royal Brompton Hospital, including enough money to purchase a heart machine for the ward. Bobbie-Jean is now petitioning for babies to be screened for this life-threatening condition, and has already gained support from over 9,000 people for her cause.
Along with her fundraising efforts, Bobbie-Jean has kept an impeccable school record and has begun working with her local youth group to explore life-saving courses. She also collaborates with the Brompton Hospital on various events and has raised over £11,000 in just one year. Furthermore, she is in talks with Colchester Hospital about piloting her petition and setting up workshops for siblings of children with heart disease. Bobbie-Jean's relentless dedication to her cause, her resilience, and her ability to inspire others make her a truly remarkable young person deserving of recognition.
The Pride of Essex Child of Courage Award 2017 was sponsored by the Cornell Centre.
Thomas was born with a rare genetic condition called Alagille Syndrome, which amongst other issues affected his liver, heart and his growth. From 6 months old he was put on medication and tube fed. At 5 years he received a liver transplant and despite complications he pulled through. Since then he has gone from strength to strength so much so that he took part in the British transplant games in 2016 and won Beaver Scout of the year with his unit. He likes playing games on his iPad and computer, and he likes Star Wars, Jigsaws, animals and wearing odd socks! He started a new special needs school this year and won a trophy for being so helpful and showing staff how to do his tube feed. He has many certificates of Achievement from Brainwave and gives his best effort to everything that he does.
Cillian Whyte, a 7-year-old from Chelmsford, is an extraordinary young boy who has overcome significant health challenges with remarkable strength and determination. Born with only two chambers in his heart instead of the usual four, Cillian underwent two open-heart surgeries at the Royal Brompton Hospital, yet his resilience has never wavered. Despite doctors advising his mother to terminate the pregnancy, Cillian’s family persevered, and his journey has been nothing short of inspiring. Even as a young child, Cillian has defied all expectations, participating in physical activities like karate and football, despite his doctors’ concerns about his stamina and exercise tolerance.
As a karate student, Cillian has excelled beyond all limitations, achieving a brown belt and competing in tournaments where he has won medals. His dedication to training is unwavering, and the scar down his chest is a testament to the strength he has shown throughout his life. Cillian's progress is a source of inspiration to everyone around him, especially in his karate club, where he is seen as a regular, energetic child with no signs of the congenital heart condition he faces. His positive attitude and determination to live life to the fullest make him a truly remarkable and inspiring young person.
Aaliyah was born with a very rare condition called Klippel Trenaunay Weber syndrome. Coupled with this she has a left leg lymphodema and her immune system is almost non-existent. The combination means she has frequent bouts of Cellulitis resulting in regular hospital visits, for up to a week a time. Despite all she has to contend with, she remains a happy girl and has an exemplary academic record at school. Her ambition is to become a doctor who specialises in her rare condition. She is here with her three very proud sisters.
Elin was diagnosed with a bowel problem when just 6 months old. Since then, every day, she needs to use a manual method to ease the pains in her stomach. The doctors are still looking for other alternatives, meantime Erin is a brave girl who, even though she hates her daily routine, always has a smile on her face and gets on with her life. Her Mum says, “Due to her problems Elin is sick a lot yet she remains caring and loving. She always tries to put other people before herself.”
At his premature birth Brogan weighed only 3lb 11oz. He had many complicated medical problems resulting from a haemorrhage, leaving 3 small holes on the left side of his brain. Doctors advised of a doubtful future, hearing, speech, sight, mobility and Cerebral palsy would all be major problems for Brogan. Three years ago his parents engaged a private specialist for weekly intense therapy. Due to Brogan’s hard work and courage, he has managed to progress so much that he entered mainstream education at St. Michaels School Braintree. He is now a happy and healthy 7 year old who likes to ride his adapted trike, and to swim, and is known in school for his cheeky sense of humour.
We are very sad to hear the news that Jacob, an extremely brave five-year-old, who battled a rare form of cancer more than half of his life has passed away. Jacob Jones, from Braintree, passed away peacefully at Little Haven’s Children’s Hospice on the 9th December 2017.
The John Ray Infant School pupil, had battled neuroblastoma, an aggressive form of the deadly disease, since he was two-years-old. Despite this, Jacob never let his illness get the better of him and his smile became a well-known sight around Braintree, where the community helped raise more than £82,000 to go towards specialist treatment for him in America. Our thoughts are with his family at this sad time.
The Pride of Essex Child of Courage Award 2016 was sponsored by the Cornell Centre.
Katie is an inspirational young lady who, although unwell most days, still thinks of others first. Katie is thirteen and suffers from a complex heart condition. Her condition was first diagnosed when she was 7. Just two years later she decided she wanted to help others. Katie and her mum set up Katie's Heart Appeal and have raised over £35000. Katie herself took part in superhero runs, Santa Runs, 5ks, and has been the driving force behind all the other fundraising events. The money raised has funded 12 public access defibrillators placed in the community and schools in Essex. She has also supplied the Children's Cardiac Unit at the Royal Brompton (Katie's hospital) with vital life saving equipment, and continues to help spread awareness of life threatening heart conditions, and how important first aid and knowledge of CPR is. Katie has even taught her peers and teachers at school how to take their pulse and how to look out for signs of a problem. Katie has made a real difference to other peoples lives, children and adults, even though she is one of those people herself. She is a role model to her friends and her teachers. Although Katie needs quite lengthy periods of time off school, she still remains in top sets for her subjects.
As one of her nominators put it, "Katie does not let her heart condition affect her daily living nor her education. She is a truly courageous selfless person, and as an inspiration to all, she is very deserving of this award.”
Rebecca faced a great many problems in her early life, which led her to anti-social behaviour, barely attending school and many other social hazards. Since coming into care, she has shown great determination to turn her life around. She has brought her school attendance up to 100% and developed a very positive attitude, which was acknowledged recently when Rebecca was appointed as a school prefect. She is working well towards her GCSEs, and outside of school is taking part in theatre productions.
Her nominator says, “Despite her difficult start Rebecca has learned to manage her emotions, enabling her to grow into a very loveable young lady, proving to be a great role model and an inspiration to all young people.”
Honey needed open heart surgery when just ten days old. She was later also diagnosed with scoliosis and a continued narrowing of her arteries, both conditions will eventually need surgery. Honey shares a room with her seventeen-year-old sister, who has complex needs. If her sister is unwell in the early hours she always wakes up and alerts her Mother, if her sister ‘fits’ she's always there to help, Honey thinks the world of her. The children’s ‘Dream’ charity granted her sister a dream to own a hot tub. Seeing how much this helped her sister and made her smile, Honey wanted to give something back. She has raised over £4000 for them to help grant other children ‘dreams’ like her sister. The charity was so grateful they’ve made her an Ambassador.
Her Mother says, “Even though Honey has ill health herself she always thinks of helping others, putting her own health to one side.”
Elin was diagnosed with a bowel problem when just 6 months old. Since then, every day, she needs to use a manual method to ease the pains in her stomach. The doctors are still looking for other alternatives, meantime Erin is a brave girl who, even though she hates her daily routine, always has a smile on her face and gets on with her life. Her Mum says, “Due to her problems Elin is sick a lot yet she remains caring and loving. She always tries to put other people before herself.”
Harvey has cerebral palsy, severe visual impairment and developmental delay. He undergoes intensive physiotherapy, self funded by Mum's tireless fundraising via ‘Harvey's Wish’. He works extremely hard in the sessions as it takes every ounce of strength and concentration for him to sit, stand or do any of the things that we take for granted. He now walks, with assistance, on a treadmill. Amazingly Harvey takes part in fundraising events for PARC children's Play and Resource Centre where he has attended for several years. He recently completed a 2km 'sponsored walk' on his disability tricycle, pedalling all the way. He cried when his hands got cold, but he (and his Mum!) refused to give up so that they could raise money for children to attend summer holiday trips just as Harvey did. Harvey and his Mum are a formidable team full of determination whilst also valuing and enjoying every moment they have together. Mum's positivity and determination have rubbed off on him, his progress is amazing and his spirit is heart warming.
Aiden from Epping had his eighth birthday just 4 days before the awards. Aiden was on a scary roller coaster ride for his first few years. He was born with his food pipe joined to his wind pipe, despite successful emergency surgery his parents were told that he would have ongoing feeding and respiratory difficulties. Aiden had many complex medical problems, he was hyperactive with no understanding of danger and struggled at school. He began making progress three years ago with the help of therapy at the Brainwave charity in Witham. Eventually home education, by his Mother and Grandmother, helped him to gain a place at a mainstream school. He is now doing very well. He has made steady progress academically, at the same time improving his social and communication skills. Aiden had previously found finger-based tasks difficult, now he writes and draws extremely well and is learning to play the piano. He has worked on his co-ordination and core strengths, loves sport and has represented his school at district games, he is also a capable swimmer.
His nominator Gerry Gould says, “Aiden is a courageous fighter who has faced a lot of challenges and is now a delightful young man who thoroughly deserves to be nominated.”
The Pride of Essex Child of Courage Award 2015 was sponsored by the Cornell Centre.
His parents call him ‘Amazing Aiden’, which is not surprising because he has always been a miracle child. Aiden was an IVF baby born just seventeen months ago, which makes him the youngest child ever to get this award. He was not expected to survive as he did not take his first breath for a massive 28 minutes. He was urgently transferred to Addenbrookes Hospital where he received groundbreaking cooling treatment for 72 hours. Additionally his parents Keith and Fleur consented to Aiden being involved in a research project looking into brain seizures. On three occasions Aiden had to wear a special cap, which measured blood flow and oxygen levels in the brain. He was a pioneer.
The Action Medical Trust that funded the cooling treatment asked if he could be the face of their 2014 Christmas appeal... with Aiden’s help they raised over £13,000.
Aiden needs additional physio to that given by the NHS so his parents took him to Brainwave at Witham. They noticed improvements from him almost immediately so actively got involved with fundraising... which so far this year has brought in £9,000. No wonder we refer to him as a miracle child. Altogether Aiden has helped to raise twenty five thousand pounds for various charities and another £5,500 to enable him to go to America for further specialist treatment where we hope the miracle will continue.
Joe Sims is from Harlow. Joe was nominated by his teacher Miss Helen Roper at Burnt Mill Academy. She told us that shortly before Joe, then aged 15, was due to take his exams, a cancerous lump was discovered on his neck. Joe refused to take any time off school, as he did not want an excuse for falling behind. He did not want to be known as the boy with cancer. He underwent what was, thankfully, a successful operation just before sitting his exams. He admitted to being nervous and felt he could have done better. He needn't have worried... he achieved nine straight A* results, comfortably gaining a place in the 6th form.
Joe still has treatment to undergo, but insists it takes place at 5pm so not to miss any time away from the 6th form. As deputy Head Boy, Joe wants to come back into school under the 'Teachers for tomorrow scheme' supporting the younger children.
Honey needed open heart surgery when just ten days old. She was later also diagnosed with scoliosis and a continued narrowing of her arteries, both conditions will eventually need surgery. Honey shares a room with her seventeen-year-old sister, who has complex needs. If her sister is unwell in the early hours she always wakes up and alerts her Mother, if her sister ‘fits’ she's always there to help, Honey thinks the world of her. The children’s ‘Dream’ charity granted her sister a dream to own a hot tub. Seeing how much this helped her sister and made her smile, Honey wanted to give something back. She has raised over £4000 for them to help grant other children ‘dreams’ like her sister. The charity was so grateful they’ve made her an Ambassador.
Her Mother says, “Even though Honey has ill health herself she always thinks of helping others, putting her own health to one side.”
Chelsie Moore-Copp used to live in London, but sadly could no longer live there due to her Mum suffering a major problem - she was an alcoholic. Chelsie had to start a fresh life, moving to Clacton and changing schools. At first, Chelsie kept her past a secret, but decided after much soul searching to tell her story. She entered a public speaking competition at school with a speech entitled 'A family illness.' Her speech, spoken from the heart, moved everyone, pupils and parents alike. As a result Chelsie has become a peer mentor for a new alcoholic support group for students who live with alcoholism in their family. Her nominator teacher Joanna Blagrove says, "Her level of courage is immeasurable. She reaches her peers where an adult may not and touches their lives with a strong message - you are not alone."
9 year old Timmy Shipton was diagnosed with Ewings Sarcoma just over a year ago. The tumour on his rib caused him pain and restricted his breathing. Throughout his surgery and treatment Timmy continued to support his local cricket and football teams, training and playing whenever he was able. Essex Cricket Club were so impressed that they joined in the fundraising at Maylandsea Primary School and even invited Timmy as their guest to the Chelmsford Cricket Ground. He has worked hard to promoted the cancer charity 'CLIC Sargent' even making a film shown in his school fund raising day. His nominator teacher Anna Farn says "He has been a true inspiration to the whole community and deserves the recognition for his courage."
Maisy Kidd-Munnery from Harwich is a brave girl, who has had a really difficult time during her eleven years. Following a very worrying pregnancy and birth, she weighed only 2lb 2oz. Two weeks later, a routine ultrasound revealed that she had suffered 2 bilateral bleeds of the brain. It was touch and go, but Maisy continued to amaze despite severe jaundice and 3 blood transfusions. When allowed home her parents noticed a lack of vision. An examination revealed Maisy was blind. Seizures began at 9 weeks, sometimes as many as 200 a day! It was eventually discovered that she also has cerebral palsy affecting all 4 limbs. Maisy enjoys life, and is able to communicate that to her parents and sister, and she is one of the few girls her age to have had a cuddle from Olly Murs!
The Pride of Essex Child of Courage Award 2014 was sponsored by the Cornell Centre.
Jessica has Cerebral Palsy, Chronic Lung Disease and Secondary Pulmonary Hypertension, she requires oxygen 24/7. She took her first independent steps age six and soon after had a trunk adapted to carry her oxygen so she could move around school independently. In 2013, aged 8, she completed a 1 mile sponsored walk, which took two and a half hours to raise money for the 100,000 smiles appeal.
In the summer holidays that year, she climbed from the summit station to the very summit of Mount Snowdon (96 steps), while foster carer Carolyn Carey carried her oxygen cylinder for her.
Robert’s battle with Leukaemia started when he was just three years old. He was in remission in 2012 when he was due to cycle in the Southend’s Junior Bikeathon. A relapse meant he was unable to. He had to go to Great Ormond Street for treatment. However, family, friends and schoolmates got together to form 'Team Robert' to ride on his behalf. Seven-year-old Robert, despite undergoing treatment, had other ideas. He persuaded the doctors to release him to Southend Hospital for a day, so that he could ride in the event, before travelling back to Great Ormond Street. That day team Robert raised almost two thousand pounds! Robert has since had a bone marrow transplant and was eventually allowed back to school.
Ava was born six weeks prematurely. All seemed well but after 10 days she was diagnosed with extensive brain damage. Further diagnosis confirmed cerebral palsy, complex epilepsy and blurred vision with no perception of light. She worked courageously at Brainwave in Witham to learn to stand, sit on her own and say a few words.
A major setback in 2011 resulted in the loss of all of her achievements. In January 2013 her mother heard her shouting ‘MUM’ in the night. It was then decided to take Ava for intensive neuro rehabilitation in Slovakia. Ava had to wear a special suit, of the same material as worn by NASA astronauts, whilst doing intensive exercises from 8.45am-5.00pm every day. She had to work really hard and cried a lot. After 2 weeks the results were amazing, Ava had started laughing and smiling.
Joshua is a double record breaker! He is the smallest child to have undergone open heart surgery and he is also the youngest child ever to be highly commended at these awards.
After eight years of IVF treatment Joshua’s Mum, Suzy, eagerly awaited the birth of her new son only to be told after the twenty week scan that the baby had a congenital heart condition that would need an immediate operation. The best chance of success was for the baby to be as big as possible. Joshua was born twelve weeks early and weighed just 2lb 7oz! A harrowing time followed, several cardiac arrests and resuscitations, nursing staff said they had never witnessed a baby so brave.
A short time later, desperate circumstances dictated that the first operation had to go ahead, although Joshua weighed only 2lb 10oz. Royal Brompton Hospital had never performed this type of operation on a baby so small. That day Joshua made history and opened up new pathways for pioneering surgery to be performed on tiny babies. The operating team reported that Joshua, had become a true hero for them, he had been amazing throughout.
Leah’s brother Luke, was born prematurely at 32 weeks, as a result he has many serious conditions. Leah helps care for him and gives him his daily medication. Experts said he wouldn't be able to walk until at least 4 years old. Luke is now two years old and Leah has taught him to walk. Through the special bond she has with him she has even got him speaking. Leah missed many school lessons due to being with her family at Great Ormond Street Hospital. She revised by herself without any complaint and managed to take her 11 plus exam. She also found time to help the family to raise over £800 this year for the ANTS Ambulance Service.
Her mum says, "Leah protects Luke and is a complete joy. She is an amazing big sister who goes far and beyond what a sister should."
The Pride of Essex Child of Courage Award 2013 was sponsored by the Cornell Centre.
Martin has Spinal muscular atrophy (SMA) type 2, a genetic neuromuscular muscle wasting condition. All his muscles are weak, particularly his legs. He has never been able to walk and had his first powered wheelchair at the age of four. Despite all of his difficulties he has never let his condition stop him from having a go at things, for example he has been a Beaver, Cub and Scout, he went to camps and abseiled down the tower at Thorrington scout camp. Martin's consultant suggested that swimming would be good exercise him. We took him to a local hydrotherapy pool where at first he was terrified of the water and wouldn't let go of the side, or of his one to one helper. After many traumatic weeks and a lot of patience he began to build his confidence, wearing a buoyancy aid, arm bands and float he took his first strokes! Now two years on he has learnt to swim on both his front, with a snorkel as his neck is too weak to lift his head out of the water to breathe, and back (with no buoyancy aids or help) and has swum over 30 metres.
At the age of 10, just before Christopher was due to start Senior School, he suffered a stroke following a bleed to his brain. This seizure caused Christopher to lose mobility, speech, and he was also impaired with short term deafness. Despite his condition, Chris is a keen swimmer and came back to the club having had to learn to walk and talk again. In the early days it was painstaking, but Chris was SO determined, he never gave up. Four years on he swims for a Swimabality Squad and in April competed in his first gala winning a gold medal for his 25m backstroke. He competed in a swimathon for Marie Cure earlier this year raising funds for this good cause, despite his own afflictions. Christopher also joined a water polo club and plays every Wednesday. He is often seen helping other members. He is also Head Boy at the Deanes School, where is described by a teacher as dynamic, particularly with his involvement at the consultation meetings regarding the proposed school closure. Christopher is a true inspiration and deserving of this award.
Annie is an amazing individual. She has mild Cerebral Palsy, which affects her walking, and her left side is very week meaning she struggles with activities. Annie never moans, even when in pain, and she struggles with things on a daily basis but always tries and does everything. Her PE teacher told us she is an inspiration to all, as she ran a whole lap of a field recently even after being told she can’t. She’s so kind and caring and always thinks of others before herself. She goes to dance class, even though it hurts her to dance, and she puts her whole energy into this. She’s a true inspiration to all who meet her. She overcomes adversity everyday, tries hard to be independent (travelling by bus). Annie has so much determination to not let her disability stop her living life.
When Fabien was 3-4 months old he had a MRI scan which showed a large cyst on the right side of his brain. His parents were told he had Cerebral Palsy, Hemiplegia. They also found that there was a difference in the length of his leg and how this could cause damage to his back. Fabien attends Brainwave and over the years has progressed to such extent that he can now stand up, walk, sit up, feed himself and more. Fabien has had numerous visits over the years to child physiologists and eye clinics and still attends clinics about his eyes. He has had to wear lycra splints and special boots to support him over the years in progressing with this walking but he has done this. At school his progress has been excellent and his classmates love him and look after him. On a recent school trip that his dad went along to help with, the children had to walk up some steep stairs and immediately his class mates went one in front and one behind him to guide him and ensure he made it to the top with them. He can now climb the stairs. Fabien is now having swimming lessons and trumpet lessons - which shows how much this little boy enjoys life and is full of determination to be like 'his brothers and sisters' and he really is achieving this.
Isabelle was born on 20th September 2005 and everything seemed perfectly fine. At 10 weeks old she seemed a bit unwell, but the doctor said she had a slight cold and it would clear up. On Sunday 11th December 2005 her dad was feeding her when she became limp, stopped breathing and started turning blue. He began mouth to mouth resuscitation whilst her mum called an ambulance. The next thing the parents knew was a priest coming to her room at the hospital, and everyone trying so hard to bring her round until one nurse said to try an adrenalin shot, and Isabelle's heart started plus a slight pulse. She had stopped breathing for 22 minutes. Two weeks later they were told Isabelle had respiratory syncytial virus, and had suffered cardiac arrest, but despite all this she fought back and on 31.12.05 was allowed home. From 10 weeks to one year there was no sign of improvement and she would have muscle spasms, her head just flopped and her limbs were always stiff and she was in constant pain. She was then diagnosed with Quadriplegia Cerebral Palsy. At 2 years old she suddenly started to smile and so her mum took her to a swimming pool to do exercises with her. As she could not speak her mum enrolled on a Makaton signing course with Isabelle who learnt how to sign for a drink, food and a few other things. She started to make sounds, and at 2 1/2 said 'da and ma.'' Isbelle has great determination, and at 3 started to pull herself up onto her feet with the aid of the furniture, and her parents were amazed when they saw her do this.
Have you been inspired by the resilience of a child in Essex? Nominate them for the 2025 Pride of Essex Star of Essex Award now!
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